Not the "A" Word!

What should you do if you suspect your child is autistic? Where should you start?

First, understand exactly what autism is. According to the Diagnostic and Statistical Manual of Mental Disorders (4th Edition), autism is a brain development disorder characterized by impaired social interaction and communication, and by restricted and repetitive behavior. These signs all begin before a child is three years old. The child may lose behaviors previously gained, have delayed communication skills, and not interact with his/her environment. If you suspect your child is autistic, contact your doctor or a specialist for evaluation.

Second, get informed! I cannot stress this step enough. Your child will need intensive therapy as soon as possible. Speech, occupational, behavioral, and physical therapy are needed even for high functioning children. Attend conferences, read articles, connect with other parents, read books, and join organizations. I have joined Autism Speaks and TACA (Talk About Curing Autism Now). Their websites are a great source of information.

Third, therapy...therapy...therapy. If you live in California, contact the Regional Center in your area as soon as possible. They provide services to kids who may be autistic. If you live in other states, contact your Department of Health and Human Services. You may want to explore biomedical options but research those carefully before considering.

Fourth, go to Autism Research Institute's website and complete the Autism Treatment Evaluation Checklist. I try to complete this checklist every time I start a new therapy or once a year.

Fifth, take time for yourself. You will not be able to fight for your child if you are not taking proper care of yourself. This is a long journey and your child needs you.

I heard two wonderful pieces of advice at a conference.
1) The squeaky wheel gets attention but the squeaky wheel coated with honey will get results. Be pushy and firm but not nasty.
2) Feel guilty, feel angry, cry...then get over it. Your child needs you.